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Rare Diseases retweeted
馃摬 馃摚 Join us TONIGHT at 6:30 PM ET for the next HAEA Round Table to be broadcast on Facebook Live! Watch as young adults discuss what it鈥檚 like to go through life milestones with HAE. #HAEA #HAE #HereditaryAngioedema #HAEAyouth #Advocacy #HAEARoundTables
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鈽 Show your support for the HAE community by drinking your morning coffee from an HAEA mug! You can purchase this mug or one of our many other drinkware items at haea.org. #HAEA #HAE #HereditaryAngioedema #Awareness #Advocacy #HAEAshop
馃専馃┖ The HAEA is excited to announce that nominations are open for the 2022 HAEA Healthcare Hero Recognition Program! 鉃★笍 Nominate your HAEA Healthcare Hero HERE: haea.org/autoforms/f/148 #HAEAHealthcareHeroes #HAE #HereditaryAngioedema #HAEA
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馃嚡馃嚨Erika Babazoe馃嚡馃嚨 retweeted
Our recent survey with @HarrisPoll found that more than 75% of #HereditaryAngioedema patients said they worry every day about having an #HAE attack. Learn more here: bit.ly/3j0m63C
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Shawn Hayes, PhD retweeted
馃弫 Today is the FINAL day to track your steps for the 2022 HAE IN-MOTION庐 - Step it Up for HAE event! Track your activity as you walk, run, or bike and help us reach our goal of 50,000 miles! #HAEINMOTION #HAE #HereditaryAngioedema
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馃泹锔 Check out all of the new items on the HAEA shop! Featured here is Morgan P. wearing the red and white HAE unisex sweatshirt. You can purchase this sweatshirt for yourself at haea.org! #HAEA #HAE #HereditaryAngioedema #HAEAshop #Advocacy #HAEAyouth
#TBT to the 2022 HAEA Advocacy event in Puerto Rico! At this event, participants learned about HAE from expert physicians and how they can take action for people with HAE in their community. Were you at this event? Let us know below! #HAEA #HAE #HereditaryAngioedema
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馃馃弮馃徎鈥嶁檧锔廡he deadline to track your steps for the 2022 HAE IN-MOTION庐 - Step it Up for HAE event is quickly approaching! Featured is Kelly W. showing off her 2022 HAE IN-MOTION庐 gear! Register NOW: p2p.onecause.com/step-it-up-鈥 #HAEINMOTION #HAE #HereditaryAngioedema #StepitUpforHAE
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馃毢 IN CASE YOU MISSED IT! Watch NOW the recording of the HAEA Webinar - Guide for Women with HAE: Family Planning & Pregnancy here vimeo.com/734006246. #HAE #WomenwithHAE #HereditaryAngioedema #HAEA
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New on Rare Disease Advisor #HAE: Real-World Data Show Effectiveness of Icatibant for HAE buff.ly/3zvOpRl #hereditaryangioedema